Tuesday, August 26, 2008

Saying Goodbye for Now: Tunalabagana

John and Susan made it to the airport safely and boarded their flight around 1:30pm. They will travel through Newark and Amsterdam before landing in Uganda. They will travel approximately 28 hours in all, and be home around 8pm on Wednesday night, Ugandan time. Words cannot describe the success and scope of the past four months. It has been a long journey filled with friends, love and much healing. We will continue to post updates on Susan as she starts phase two of her new life in Uganda. Thank you all. Webale.

Day Before Leaving

Susan and John spent their last day in Boston getting packed and ready to leave. We did have a chance to stop by Karibu and say good bye to Amina. We also took some food to go and had a lovely Ugandan meal for our last night together. Packing and last minutes errands took most of the day, but we spent the time together. The top picture is John, Susan and Amina. The bottom picture is the Lamont family, Kevin, Pat, and Meredith, with John.

Sunday, August 24, 2008

Thank you to Albany

Today, Susan and John left Albany and said good-bye for now. We would like to thank everyone in New York for their support and help along the way. The friendships made will last forever. The top picture is with Dr. Bob, the middle with the ladies, and the bottom with the "kids." Susan and John are now heading back to Boston to get ready for their journey home on Tuesday.

Thursday, August 21, 2008

Shriner's Follow Up, Wednesday

This is Susan and her surgeon, Dr. Simon.
Dr. Simon performed the second surgery and checked the progress
on Wednesday. He said that everything looks perfect, and is healing the way they had hoped. Susan will still have to wear a conformer and special shirt for the next six months until the healing is complete.
The second picture is one of our wonderful care coordinators, Sandy. Sandy has been so helpful and provided John with the paperwork needed for Uganda. Thank you both.
(Susan may need one last visit on Monday.)

Monday, August 18, 2008

Cookout on Sunday

Susan is feeling well, opening up and speaking so much English. She has learned much over the past 3 months. Her wounds are healing slowly but she now seems free of pain. She has made many new friends and all of New York has fallen in love with both John and Susan.

Saturday, August 16, 2008

Trip to Albany

Susan and John traveled to New York this week where they will be staying with the Weinman family for a bit. They will be meeting many of the families in Albany who have been supporting this journey. Here are Susan and Sarah Weinman as they hang out in the backyard after baking earlier in the day and then playing a gentle game of badmitten. The Weinmans are loving having them as part of their family for awhile.

Friday, August 15, 2008

More Healing

Susan relaxes after a long day at Shriner's. She is very happy to be out of both immobilizers, although she is still very bandaged from the waist up. Her next follow up appointment is Wednesday, August 20th, and the doctor will check the progress of her healing.

Wednesday, August 13, 2008

Shriner's Clinic Appointment

Susan and Melissa, her wonderful care coordinator.

Susan had an extremely successful day at Shriner's on Wednesday. Her stint was removed from her chest and upper abdomen and it looks great. She is still bandaged tightly but out of her immobilizers. She can now bend her right leg and is no longer in the chest cast. Everyone at Shriner's was very pleased with the results, as was Susan. She was nervous this morning, but is now very very happy. The picture in the middle includes Sandy, Melissa, and our nurse today at Shriner's. The bottom picture is Susan before her stint was removed.

Monday, August 11, 2008

Monday, Donor Site

Here you can see the donor site healing on Monday. As it heals, the gauze and fluid are removed and the skin is left to return to its natural color. It is still sore, but much improved. You can see that Susan does not look as though she has too much pain today.

Sunday Out

Susan felt up to getting out of the house for a few hours on Sunday. We went to a high school production of 42nd St. and Susan loved the tap dancing. We were lucky enough to request the front row of the balcony and able to keep Susan's leg straight during the whole show. Then, we headed to Friendly's for our post theater meal. It is great to see that Susan's pain has almost gone away and she is feeling so much better than last week.

Saturday, August 9, 2008


Here Susan sits and works on putting her pictures into her photo album. She is definitely feeling much better than earlier in the week. We may even get out of the house over the weekend if she is up to it.

Thursday, August 7, 2008


Susan is feeling better today. It has been a slow week of recovery but the pain seems to be going away. She is still in her two immobilizers but is moving a little faster and laughing a little more. She spent today watching TV, reading, and knitting.

Sunday, August 3, 2008


This is Susan resting on Sunday. It has been a weekend of staying in bed or on the couch as her leg and chest heal. She is in some pain and very sleepy much of the time.

Saturday, August 2, 2008

Home to Recover

Susan was discharged from Shriner's on Friday. Here she is during first few hours at home. You can see her new donor site on her left leg, which was used for the grafting on her abdomen and chest. She is wearing a cast on her upper body and an immobilizer on her right leg. She will be resting a lot over the next week or two. It hurts her to laugh so we should not have watched Mr. Bean, but we did anyway.